The Health Data Hub will lead the European health data space


On July 19, 2022, the Health Data Hub, a platform for centralizing a large volume of health-related data, announced in a press release that it has become the managing entity of the pilot project on the space European health data. The Health Data Hub will choose sixteen partners from around ten European countries to form and lead a consortium that will develop and deploy this space. The Health Data Hub, leader of the European health data space pilot project After a call for projects launched at the end of 2021 by the European Commission, it made its choice official. It will be the Health Data Hub, the French public interest group in charge of launching a platform that brings together all the data of health insurance and hospitals, whose mission will be to build, with the help of several organizations, the first future version European Health Data Area (EDS). In the same category Semiconductor sector marred by several corruption cases in China EDS will be a “network of data source platforms” based on strict regulations and whose resources will improve research, innovation, patient safety, policy development and statistics. studies. Thus, all the health data platforms of the participating countries will be connected to each other. The consortium will also have to assess the feasibility, interest and capacity to deploy this infrastructure in the EU. At the moment, the regulations governing this device must be approved by the European Parliament and the European Council. According to Stella Kyriakides, Commissioner for Health and Food Safety, the EDS is “a game changer when it comes to the digital transformation of healthcare in the European Union while putting citizens at the center, giving them the power to control your data to benefit from it.” of better health care”. Among the partners chosen by the Health Data Hub to be part of the consortium are the Belgian health agency Sciensano, the Finnish health and social data authorization authority Findata or the general management of Hungarian hospitals. The Health Dat Hub of choice, although it is still hosted by Microsoft Azure. The project of the European health area is in the crosshairs of several organizations that try to counter or better regulate its arrival. Recently, the European Data Protection Board (EDPB) and the European Data Protection Supervisor (EDPS), two bodies of the European Union specializing in data, had published their recommendations for better protection of health data. , referring to the system that will be established. created by the Health Data Hub. Nothing obliges the French platform to follow these recommendations. The health data center was chosen while it is still hosted by Microsoft Azure. This choice has been questioned for several years by many digital actors and politicians. The Anticor association had taken over the national financial prosecution, considering that the French government had chosen Microsoft Azure without having put it in competition with European solutions. Microsoft’s choice had also been called into question since the Privacy Shield, a text that authorizes the transfer of data from Europe to the United States and vice versa, was invalidated. Microsoft being an American company, the risk was conceivable. However, the State Council had dismissed any fears as an amendment required Microsoft to receive approval from the Health Data Buh for any data transfer “outside the specified geographical area”. Because of these two controversies, the French government had decided to stop the Health Data Hub, which had not recovered the data from the old National Health Data System (SNDS).
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